H.R. 3491 · Passed House · Health

DeOndra Dixon INCLUDE Project Act of 2025

Sponsor: Diana DeGette (D-CO)

What it does

• Provides statutory authority for an NIH program conducting research and training on Down syndrome, including co-occurring conditions and quality-of-life improvements.
• Requires NIH to coordinate with stakeholders and avoid duplicating existing Down syndrome research efforts.
• Mandates biennial reports to Congress cataloging NIH Down syndrome research results and medical applications.

Official summary

DeOndra Dixon INCLUDE Project Act of 2025 This bill provides statutory authority for a program of the National Institutes of Health (NIH) that carries out research and training relating to Down syndrome, including with respect to co-occurring conditions and improving the quality of life of affected individuals. The NIH must implement the program in consultation with relevant stakeholders and avoid duplicating existing NIH Down syndrome research. Biennially, the NIH must submit to Congress a report cataloging the research, including results that may be used in medical care or clinical research.

Latest action

Jul 21, 2026: Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

Committee: Senate Health, Education, Labor, and Pensions